An Ilkeston mum will run the London Marathon to raise funds for her little girl who has a rare disease.
Samantha Bell-Minogue, 30, of Charnos Street, wants to raise funds to help children suffering from Maple Syrup Urine Disease.
Her daughter Poppy was disgnosed with the condition after months of being ill. Changes made earlier this year mean that newborns will now be tested for such conditions.
Samantha and husband Eugene are in the process of setting up a charity called Maple Syrup Urine Disease UK, which is currently being rubber stamped.
This will be the fifth time Samantha has ran the London Marathon, and she is aiming for a time of three and a half hours.
She said: “I’m anxious, nervous and exicited but thinking about Pops will get me round. She was born on the day of the marathon - it all links in, it’s an emotional time.”
As they are still setting up the charity funds will be held within the Danny Porter Foundation for the time being.
Samathna said: “Dan is a friend who I have met through work. He had to fight off the ‘Big C’ on numerous occassions over the past few years and is an inspiration to all.
“Dan was diagnosed with a rare form of cancer called Adenoid Cystic carcinoma ACC just a few weeks after his first son was born.
“He and his family made the decision for him to face the C and go into a 24 hour operation. It involved surgery through the top of his head, a brain lift, the loss of his right eye and most of his bone structure in the right side if his face and only a 50 per cent chance of success. Since then Dan has set up his charity.”